Skip to main content

Stay Well



Have questions? Need to talk?

Those recently diagnosed with hidradenitis suppurativa and their loved ones often describe feeling lonely, isolated, and anxious at first. However, it doesn’t have to stay that way. Hidradenitis Suppurativa One to One connects you with people who have hidradenitis suppurativa. They have been through what you are going through and are thriving. We also now have volunteers that have experience caring for a loved one with hidradenitis suppurativa disease and are eager to connect with you!

Get what you need to overcome your and your loved one’s struggles with the disease:

•Disease and treatment information (not medical advice).

•Resources, such as locating a health care provider experienced in treating hidradenitis suppurativa diseases in your area, and opportunities to connect with others in the hidraadenitis suppurativa disease community.

•Goal setting goals for a healthier lifestyle

•Emotional support

Will hidradenitis suppurativa influence my ability to have an intimate relationship?

Intimacy is a very personal decision.  For those who choose to be sexually active, hidradenitis suppurativa will be a concern if you have it in the genital area.  It is mainly a worry because the hidradenitis suppurativa can become irritated, especially if it is flaring.  

Our Impact This Year

  • People Helped


  • Volunteer Hours


  • HS Speaks


© 2024 ‎International Association of Hidradenitis Suppurativa Network

Powered by Firespring